You are not alone
Whether you live with sickle cell disease, care for someone who does, or want to stand beside the community, hope and practical support start here.
Hope Starts Here — Where Hope Becomes Action.
Start where you are
Choose the path that fits your needs. Each one connects you with clear information, practical next steps, and a community that understands.
Find education, questions to take to your care team, wellness resources, and ways to connect with people who understand the journey.
Request supportUnderstand sickle cell disease, trait, treatments, healthy living, advocacy, and the importance of informed care.
Visit the Education CenterVolunteer, attend an event, become a partner, or help raise awareness in your workplace, school, or community.
Explore partnership opportunitiesYour generosity helps expand education, outreach, family support, and community-centered sickle cell initiatives.
Make a secure donationPractical help, in one place
Start with trusted education, prepare for care, explore research opportunities, or ask our team to help you locate an appropriate community resource.
NIH guidance for routine care, healthy living, pain planning, and working with your healthcare team.
Visit NHLBICDC tools for creating a pain plan and preparing to seek sickle cell-specific acute care.
View the CDC toolkitLearn about sickle cell disease, trait, treatment, inheritance, advocacy, and informed care.
Start learningExplore actively recruiting and upcoming sickle cell studies through the federal research registry.
Search ClinicalTrials.govAsk for help locating transportation, insurance navigation, financial assistance, or local support resources.
Request resource navigationConnect through educational programs, awareness activities, family-centered events, and community outreach.
View MBS EventsExternal resources are provided for general information. Availability and eligibility vary. Discuss medical decisions and clinical-trial participation with a qualified healthcare professional.
Support that sees the whole person
It can touch school, work, relationships, emotional wellbeing, finances, and daily routines. Our approach centers dignity, trusted information, and practical connection—because every person deserves to feel heard and supported.
Request support
Our team can share relevant information or help identify an appropriate resource when available. Please do not send diagnoses, medical records, insurance numbers, or other sensitive health information.
Use our general contact page to request education, caregiver information, community connection, or resource navigation.